Love in the Final Chapter: Caring for a Loved One in Home Hospice
October 15, 2025
When it comes to end-of-life care, 71% of Americans believe the goal should be to help people die without pain, discomfort, and stress. The focus of hospice care is on quality of life and symptom management, and it is designed to provide comfort to individuals with a life expectancy of six months or less.
A team of medical professionals addresses the patient’s physical, psychological, and spiritual needs on a case-by-case basis, ensuring that every patient receives a care plan tailored to their specific needs. Care is most often delivered in the patient’s home, and the hospice team can support caregivers during this process.
Quality is Key
Hospice is end-of-life care, but that doesn’t mean someone receiving care will pass right away. While doctors recommend hospice when a patient only has six months or less to live and is no longer responding to curative treatments, many patients live longer. In such cases, what matters still is a patient’s quality of life, not quantity.
“Each person’s journey at the end of life is different,” says Jessica Kelly, a licensed hospice nurse in New York. “We tailor our care to meet those unique needs, whether that’s managing pain, supporting emotional well-being, or helping families share meaningful moments together.”
Home Care Takes a Toll
While it is nearly everyone’s preference to pass away in the comfort of their own home, the task of caregiving can be more than loved ones expect. “I do think that when patients are at home, they are in a peaceful environment,” says Parul Goyal, a palliative care physician. “It is comfortable for them. But it may not be comfortable for family members watching them take their last breath.”
The burden put on loved ones, especially spouses, can cause caregiver syndrome, which is characterized by the stress and burnout that comes from providing constant care to someone who is chronically or terminally ill.
“Our long-term-care system in this country is really using families, unpaid family members,” says Katherine Ornstein, a professor of geriatrics and palliative medicine at Mount Sinai. “What we really need to do is to broaden the support that individuals and families can have as they’re caring for individuals throughout the course of serious illness.”
Self-Care for Caregivers
Providing care to a hospice patient can be both rewarding and difficult. Social psychology researchers Richard Schulz and Joan Monin found that caregivers suffer when they witness their loved one’s suffering without feeling like they can remedy it. It becomes important not just to care for the patient but for caregivers to care for themselves as well.
One way to start accepting a terminal diagnosis is to begin getting a loved one’s affairs in order. It can be helpful to collect necessary documents and passwords and to begin sorting through possessions. Staying busy during the care process can help manage emotions as they arise.
Handling Grief
It’s easy to get paperwork and belongings in order. It’s not as easy to manage your grief. The loss of a loved one is among life‘s most significant stressors. Grief can affect every aspect of your health. While everyone’s experience is different, it is common to feel intense emotions during a loved one’s illness and after losing them.
Here are ways caregivers can take care after loss:
- Express your emotions. Bottling them up will only intensify them.
- Don’t put yourself on a timeline. People move forward at their own pace. Trust that your pain will lessen over time.
- Take care of yourself as you grieve. Eat nourishing meals, stay hydrated, and sleep enough.
- When you’re ready, exercise. It can reduce stress, tension, and sadness.
- Hospice providers make grief support groups available to anyone who has lost a loved one in hospice care.
- The Hospice Foundation also offers a newsletter to help during bereavement.
When to Seek Help
Most people find a way to adjust to their loss, but it is a painful and uncomfortable process. About 10% to 15% of people who are grieving have a complicated reaction to their loss. Grief experts agree that if grief is unmanageable, meaning someone has not returned to their pre-loss level of functioning within six to 12 months, it may be time to seek the professional help of a grief counselor. Your hospice team can help you find the care you need.
Handling a loved one’s affairs is one way caregivers can manage their grief. With Insureyouknow.org, you may organize financial documents, property records, and other documentation of personal effects. Getting everything in order can bring you some peace of mind during emotionally challenging times.